Through Open-Ended Discovery Interviews, we validated that SPACD patients are experiencing a multitude of challenges as they traverse the journey of finding effective treatment. Interviews revealed that many participants experience challenges in their relationship with their providers and desire a more holistic solution. Many patients experience multiple SPACD conditions at once, but often receive disconnected treatments that only address one condition. This is a result of treatment providers not listening to their patients with an open mind to understand the "bigger picture." Patients may not always have the most informed evaluation on the effectiveness of their treatment, but they value that treatment through the level of compassion felt from the providers. If they feel their needs aren't met, patients are motivated to do their own research. Changing providers and insurance was also a considerable pain for patients because it is challenging to rebuild trust.While some patients have found treatments that made their symptoms manageable, many patients still continue too live with these challenges that interrupt their daily lives.
Many of the pains we heard in our Open-Ended interviews were confirmed and expanded upon during our Prioritized Pain Point interviews. Participants revealed that the four strongest pains heard out of ten pains were wanting a holistic treatment regimen to improve their overall wellness, feeling like providers don't truly listen or understand them, feeling anxious if they're not receiving continuous and uninterrupted care, and facing a difficult process of trial and error when seeking treatment.Participants also added new pains to the list including wanting better access to medications that work, disliking the side effects of their medication but having no other option, and feeling anxiety and frustration with ongoing administrative paperwork around treatment.
The 45 interviews with providers and subject matter experts revealed that there is a lack of providers to treat patients more holistically. Providers face limited resources in their specialties, which leads to less quality in care when treating patients and decreased incentives to referring patients out. Additionally, providers have their own challenges and can't always help in the way they'd like to. All providers stated that treating individual patients always brings unique challenges. Some behavioral health providers observe that medication alone can just be a bandaid for symptoms, but not heal the root cause. Medical providers are generally more willing to prescribe medication. Still, providers have to be cautious when prescribing medications due to factors such as the opioid crisis and stigmas around meds. Some providers are open to incorporating or referring patients to new alternative medications, while others remain skeptical.